top of page
Search
Writer's pictureKristy Mandigo Kinkor

Understanding Epilepsy: Causes, Symptoms, and Living with the Condition and More…

Introduction


Epilepsy is a neurological condition that affects millions of people worldwide, characterized by recurrent and unpredictable seizures. Despite its prevalence, epilepsy is often misunderstood. In this blog, we will explore what epilepsy is, its causes, types of seizures, how it’s diagnosed, and ways to manage the condition to live a fulfilling life. Understand that this does not work for everyone and judging others with this condition leads to mayhem and bias. no one has the same brain or body everything processes differently these are just some examples of what epilepsy is and awareness and how to live with the it does not provide the means to address any biases that you might have for your loved ones, acquaintances, or yourself!


What is Epilepsy?


Epilepsy is more than just a word! It is a chronic disorder of the brain that leads to seizures. A seizure happens when there is abnormal electrical activity in the brain, which can affect different parts of the body. The type, severity, and frequency of seizures can vary from person to person, depending on the part of the brain involved and the underlying cause. In some respects having epilepsy is like having circuitry restart. Once you learn the science behind it, it is quite an interesting phenomena that many other chronic conditions do not encompass. it is also a very broad spectrum that can lead to other chronic conditions both with side effects of medication, but also compromise your way of life based on the episodes that you might have.


Causes of Epilepsy


The brain is very complex and it’s very difficult to pin down causes of the condition. In many cases, the exact cause of epilepsy is unknown, but several factors are known to increase the likelihood of developing the condition. it is also not a stagnant condition where once you have an epileptic seizure that cause is consistent overtime, it can change based on how your brain changes and you may not have epilepsy your entire life start as a baby, during puberty or trauma. It could also be a lack of other medical impairments or it could be hereditary. This condition is something that is ever evolving and new reasons for having epilepsy and identified every day.


1. Genetic Influence: Some people may have a genetic predisposition to epilepsy, meaning they may inherit genes that increase their risk of seizures.

2. Head Trauma: Serious head injuries, such as those from car accidents or falls, can lead to epilepsy.

3. Brain Conditions: Tumors, strokes, and other conditions that affect brain function can also result in epilepsy.

4. Infections: Infections such as meningitis or encephalitis can cause damage to the brain, leading to seizures.

5. Prenatal Injury: Brain damage that occurs before birth due to poor nutrition, lack of oxygen, or maternal infections may lead to epilepsy.

6. Developmental Disorders: Conditions like autism and neurodevelopmental disorders may also be linked with epilepsy.


Types of Seizures


Seizures in epilepsy are generally classified into two categories:


1. Focal Seizures: These begin in one area of the brain and may or may not involve a loss of consciousness. Focal seizures can cause changes in sensory perception, uncontrolled movements, or emotional disturbances.

2. Generalized Seizures: These affect both sides of the brain from the start. Generalized seizures may cause muscle stiffening, jerking movements, or loss of consciousness. Some common types include:

Absence Seizures: A brief lapse in consciousness, often mistaken for “daydreaming.”

Tonic-Clonic Seizures: What most people envision when they think of seizures, involving convulsions, loss of consciousness, and stiffening of the body.


A person might have more than one of these combinations. a person is not limited to having one condition which makes it even harder to diagnose.


Diagnosing Epilepsy


Epilepsy is typically diagnosed through a combination of medical history, neurological exams, and tests. The most common diagnostic tools include:


1. Electroencephalogram (EEG): This test records electrical activity in the brain to detect abnormal patterns that may indicate epilepsy.

2. Imaging Tests: MRI and CT scans can help identify structural abnormalities in the brain, such as tumors or lesions, that could be triggering seizures.

3. Blood Tests: These may be done to check for underlying conditions like infections or metabolic disorders that could be linked to seizures.


Living with Epilepsy: Management and Coping Strategies


Although there is no cure for epilepsy, many people with the condition can lead healthy, active lives by following a treatment plan. it is important that everyone’s ability to adapt to this condition is different, especially when the condition is entered at different stages of life and how it is entered into an individuals ecosystem whether it be home work personal experiences and more. There are some ways to manage epilepsy:


1. Medications: Anti-seizure medications are often the first line of treatment. It’s important to take them as prescribed and report any side effects to your doctor.

2. Surgery: For some people who don’t respond well to medication, surgery may be an option. The goal is to remove the part of the brain causing the seizures.

3. Dietary Changes: In some cases, the ketogenic diet (high fat, low carb) has been shown to reduce seizures, especially in children.

4. Lifestyle Modifications:

• Get regular sleep.

• Avoid excessive alcohol or drug use.

• Manage stress through mindfulness, meditation, or therapy.

5. Support Systems: Epilepsy can be emotionally and socially challenging. Building a strong support system of family, friends, and healthcare professionals is essential. Joining epilepsy support groups can also provide a sense of community and shared experience.


Most individuals have a mixture of all five or many only need one. The chronic condition is so advanced that it is difficult to know if a person needs one or many especially as they age and the condition progresses for some it might remain the same and others in my progress based on our circumstance. Every seizure creates damage and to identify the damage tissue or impact to the damage is often unknown. It can be a very experience, especially without the support systems in place. Often medical professional have to educate the educators and the law-enforcement, as sometimes seizures prevent themselves as being crazy or childlike. People have gotten arrested for and people have been called very mean and ignorant words that should never be repeated because of individuals child behavior before or even after the seizure. Medication makes a huge impact peoples bias towards themselves, loved ones, or acquaintances.


Seizure First Aid: What to Do


It’s important for people who live with someone with epilepsy or are often around them to know how to respond to a seizure:


• Stay calm and remain with the person.

• Gently guide them to a safe place, away from hard or sharp objects.

• Place them on their side to prevent choking.

• Time the seizure. If it lasts longer than 5 minutes, call emergency services.

• Do not restrain the person or put anything in their mouth.


No, not everyone wants to be treated the same. It’s always good to know. Sometimes the guidance of the five minutes is not always accurate. Based on the post methods of how epilepsy is presenting itself. Also, some individuals might have advanced epilepsy and already are aware and they might have a treatment plan. It is important for the caregiver or individual with that condition to manage those expectations stated above as these are very generic and sometimes misunderstood.


Conclusion


Epilepsy is a complex and varied condition that requires ongoing management, but with the right care, people with epilepsy can live full and rewarding lives. Educating yourself, seeking support, and working closely with medical professionals can make a big difference in managing the challenges that come with the condition. It’s easy to say not to be afraid but most people with this condition live in fear so if you are a friend or acquaintance, I urge you to find a way to decrease the fear. And use method of creating a calm atmosphere and not letting it show through your eyes. Everything that has been stated, Is not to be a negative but encouragement that anything is possible with the right treatment. I have epilepsy and many other neighboring conditions and unrelated conditions. My ability to manage without a caregiver has been phenomenal. I would never expect someone else to be able to do the same path that I have used I urge you never to give up. Find the possible within the impossible.


Resources


• Epilepsy Foundation

• National Institute of Neurological Disorders and Stroke (NINDS)

• Your local epilepsy support group


Feel free to leave a comment on my social media or share your experiences. Together, we can spread awareness and support those living with epilepsy!

3 views0 comments

Recent Posts

See All

Comments


bottom of page